Some recently updated content is available in Japanese while its English translation is being prepared.
Understand HS.Share experiences.
We are a patient organization for people living with hidradenitis suppurativa (HS). We share information about HS, everyday life, and patients' experiences.
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HSVCJ
Add us on LINE
on LINEHS information and updates, usually twice a month
External website — opens in a new tab -
Read about HS and keep a record of symptoms and treatment
External website — opens in a new tab -
A Word Beside You
Read daily letters and save words you like
External website — opens in a new tab -
Could this be HS?
Recognizing symptoms and seeking care
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Hydrangeas & the purple ribbon
Why we chose these symbols
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Healthcare & research
Working with our patient organization
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Support our work
Share information, tell your story, or donate
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Run by people
living with HS.
HS Voices Connect Japan shares information about HS and patients' experiences. We are also preparing for dialogue with healthcare professionals and researchers.
We do not promote any particular treatment. You are welcome simply to read and use the information here.
Our activities and organization01 Sharing experiences We share patients' experiences and practical approaches to daily life.
02 Sharing information about HS We publish information about the condition and seeking care.
03 Dialogue with healthcare professionals and researchers We are preparing ways to share the experiences of people living with HS.
