HS Voices Connect Japan (HSVCJ), also known as Koetsuna, is a patient organization run by people living with hidradenitis suppurativa (HS). We share information about the condition, everyday life, and patients' experiences.
Learn about our activities
Our official website introduces our organization and shares activity updates. We publish patients' experiences and information about HS, and are preparing for dialogue with healthcare professionals and researchers.
Find information
The official website menu links to our patient website, Living with HS, and A Word Beside You.
Reading personal experiences
Personal accounts describe one person's experience. The same treatment or practical approach may not have the same results for someone else. If you are unsure about treatment, speak with your healthcare team. HSVCJ does not promote any particular treatment.
You are welcome simply to read
You can use the information here without submitting a personal story or taking part in our activities. You do not have to share your own experience.
Find out about our organization and read our news here.
https://hsvcj.jp/
