HS Voices Connect Japan has launched Living with HS, an information website for people living with hidradenitis suppurativa (HS).
HS is still not widely known. Diagnosis can take time, and everyday challenges and practical ideas are not easily shared. These circumstances can leave patients isolated.
At HSVCJ, we have gathered information on:
- The basics of HS
- Treatment
- Practical ideas for daily life
- Patient voices
These topics are brought together in a patient information website that we have now launched.
We hope Living with HS will be a place where people can feel a little more at ease while finding information.
Symptoms and everyday concerns vary from person to person. We cannot offer every answer, but we believe the experiences and practical knowledge of others facing the same condition can sometimes help.
We will continue adding content gradually and organizing information for people living with HS.
Please take a look if you would like to.
Living with HS — patient website https://pat.hsvcj.jp/
HS Voices Connect Japan
HSVCJ welcomes accounts from people living with HS. We plan to share these on the website in the future.
